Tuesday, November 25, 2014

11-25-14 My Eyes are Up Here--The Procedure


Have you ever noticed how people who have "something" done love to talk about it? We go on and on, bringing every subject back to ourselves. We assume that, since we think it's an interesting topic everyone will think it's an interesting topic? Sorry about that!!! If you don't think I'm the most interesting topic, you'd better skip this one!

My day yesterday began at 9:00 when we pulled up to St. Elizabeth's Hospital. If you don't know, Blue Cross/Blue Shield is having major issues with the Catholic Health Initiatives providers and won't pay if you go there. But all my records are there, and they have a better program for breast cancer patients. AND if you jump through about a million hoops and are a cancer patient who has already began treatment through STE, they will give you permission. Which, finally, after many calls to BCBS and conflicting answers on what needed to be done, permission was granted.

Next stop was my short-stay room where I put on a stunning ensemble of pukey lilac paper gown that hooks up to a heater hose. And those gray footie socks are quite the way to top off the outfit!! The nurse got my IV started and gave me some wonderful valium to help me with nerves. I could very easily turn into a drug addict.

Next stop...sentinel node biopsy prep. Let me explain what that means in Kitt's terms...years ago when they did mastectomies it was really a horror story because they had one surgery that they did. They took muscles and about 30 lymph nodes (which run sort of through your muscles under your arms and the removal of them is more painful than the actual mastectomy). That is where you get the stories of women unable to use their arms after surgery or having arms swelling up to elephantine-size.

Now they have discovered that if breast cancer is going to spread to the lymph system it must start with node #1--the sentinel node--before it goes on to node #2 and node #3. However, it's kind of hard to figure out which is the sentinel node because it doesn't look any different and may not be located in the exact same spot for every woman. So you go to radiology and they stick you with 4-6 little shots near the nipple full of radioactivity. It sounds terrible awful, but it's not too bad at all. Little shots and the radiologist has them all done in about 30 seconds and they don't go deep. Then you wait for 30 minutes while this nuclear stuff goes to the sentinel node. Next up is a scan to make sure it's in the lymph system.

During surgery they ran a geiger counter over me to find out which node it is and injected it with a bright blue dye. That way, during surgery, they can SEE which node is the sentinel and remove just that one (or maybe node #2 and #3 also, just for good measure.)

The anesthesiologist made the pre-surgery visit to my suite and I told him, "I tell every anesthesiologist I have that I throw up after surgery. And they always say, 'Oh, I can take care of that.' and I ALWAYS still throw up. Please make it so I don't do that." (He was a few years older than me, if you want a mental image.) He hemmed and hawed and basically said he could not guarantee that. After he left I said, "Boy, that was a downer." But you know what...I never threw up!!! Whatever he did worked like a charm.

My surgery was scheduled for 1:00 but they didn't actually take me back until 2:00. Way to stretch out the suspense!!! I had done pretty well emotionally until the nurse came in and said, "I'm the nurse to take you to surgery." I burst into tears then. She patted me and then began to talk a blue streak to try and get my mind of it. I had calmed down by the time we went into the OR, then one of those nurses said, "Can you tell me what they're doing?" I said, "A bilateral....ma....stec....." and was off crying again. I'm pretty sure the anesthesiologist thought, "Let's get her sedated!!!"

My favorite line of the day...and I think this really happened and it was not part of a dream...the recovery nurse was calling up to tell them I was ready for a room. She said, "It says she's 55-years-old but she looks younger." Yippee!!! I have always thought I looked my age, though. But I'll take whatever compliments I can get!!!

I didn't get to my room until after 6:00 p.m. and then dozed and ate a sandwich and watched some TV. When they have asked me my pain level, I said, "Oh, about a .5." (Yes, you read that right...point five!!!) I have hardly needed the pain pills, taking them only when I want to be sure to sleep. Thank you, God!!! I feel relatively good, which is a very nice surprise.

So, there's my story. I'll send another blog next week covering "The Post-Op." But first I need to have some post-op to talk about!!!



Pray that I can get these two annoying drains out on Monday. They are bulky and gross.

Pray that the pathology report, which should probably be in about Monday, would be good. Just because cancer didn't show up on the MRI, there could still be some small amounts that didn't show up.

Pray I would regain my strength quickly, but not push TOO hard.

Tuesday, November 18, 2014

11-18-14 My Eyes are Up Here-Prelim


I have thought long and hard about whether to write this blog, the one about my surgery. I am pretty open about everything that happens to me, and have no problem talking about it all with women, but I feel kind of funny about talking about these private parts when I know men read my blog.

So, here's the deal...I will write about my surgery...I will be pretty, kind of, mostly open about it all (women, if you want more detail, just ask me!) Men, you are allowed to read my blog, mostly because you all have a wife, mother, sister, who may have to walk this road at some point. However, you are NOT allowed to post any comments on these blogs. Ever. You are to be silent stalkers of these blogs. Got it?

These are just my opinions and decision making processes--everyone has decisions to make about their own care and they may be 100% different than my decisions. Both can be right...


A couple points to set the stage...

  1. The surgery is called a masTectomy, not a massectomy. 
  2. I am having a bilateral mastectomy with no reconstruction.  I just have zero interest in having the reconstruction surgery. (Even though one procedure involves taking fat from your tummy and injecting it into your boobs. Really.) I don't know just why it does not interest me. Maybe because I've never been totally happy with "the girls." They've always been a grave disappointment to me. Maybe because I don't want surgery to be any worse than it already will be. Maybe because I don't think the results will look like real bosoms. This is just what I have decided for me.
  3. It will involve 1-2 nights in the hospital. That's it. Seems like you should get a week in a spa if you have to endure this. (BTW--I would prefer no visitors during this hospital stay (except Loy, of course. I would like some time to adjust to all this before "going public.")
I have realized that I am not working (not at all) to adjust to the thought of what life will be like bosom-less. I am concerned enough about surgery and just want to get through that. I'll worry about the mental adjustment when it's time. Don't know if that is wise, but that's what I'm doing. I had a dream the other night that I was being prepped for surgery and they were going to have me walk into the operating room. Right before we left the prep area they put a black hood over my head--like the kind they do when they execute someone!!! Creepy!!! We've got to get this surgery in the rear view mirror!!!

My MRI was Monday and it showed...NO CANCER!!! None. Zip. That is the best possible news there could ever be!!! We still do the surgery, just to give me better chance of long-term survival, though. 

Therefore, surgery is scheduled for Monday, unless someone cancels before then--and if they do, their time is mine!!! The doctor says I will be pleasantly surprised at how little discomfort there will be post-op. I have a hard time believing this. There are no restrictions on me and he wants me to move around and be up and about as much as possible afterwards.

Since breast tissue is not like removing a gall bladder, all in a little sac that you remove, it is impossible for doctors to remove every single breast tissue cell. So there is always a chance that some random cell will "turn to the dark side" down the road. But, we will NOT allow that to happen, right???

Insurance is fighting me all the way. They don't want me to go to St. Elizabeth's Hospital (but they DID finally approve it). They didn't think I needed another MRI (I mean, they know better than a doctor, right?) They are disputing the need for additional genetic testing because I had it done six years ago, back when they check two genes. Now they check 25 genes. I keep fighting. 

So, if you want to pray, please pray:

1. That there would be a cancellation this week to get this over with for me!
2. That I would not have too much discomfort post-op.
3. That cancer would be eliminated forever in my body.
4. That my magnesium levels would get back to normal (caused by the chemo being hard on my kidneys--I have had seven magnesium IV's in the past 6 weeks.)
5. That I could regain some strength. I am so wimpy right now!!!!

Thanks!!!

Kitt.