Friday, December 19, 2014

12-20-2014 Choosing a New Bosom


I have discovered that navigating through the new world of "mastectomy things to know" is not always straight forward. You hear certain things from one doctor (but I've heard others hear different things from their doctors) regarding PT, what to wear, when to remove drains, recovery time, etcetera.

But, when you really want to get the Skinny, you go to the Bosom Buddies--the women who have had a mastectomy. We all share everything we learn and that's where you get the informative, good stuff.

I have a friend who is about six weeks ahead of me in the mastectomy biz. She had a single, but there is still lots to learn from her. She had told me that she wasn't going to go get her prostheses and special bras until about February. Evidently we need several months to really heal and having things pressing on and rubbing tender chest incisions would not be good. So, I was OK with that.

But...then I got to thinking about my insurance. I have more than met my deductible this year and wouldn't it be nice to get my insurance-paid bras this year, then get more next year???? So I called the home healthcare supplier. They were wonderful!!

Teri got me in that same day for a measuring. And this is what they told me..."We'll get you four bras to take home today (I can't believe my insurance pays for four per year!!!) and you can try them on when you're ready in January or February. If they don't fit, bring them back and exchange them."

Two different employees there told me, "Since you had a bilateral mastectomy, the sky is the limit on what size prostheses you choose!" Really? Do women really amp up their bust like this? Can you picture me like this:


No, I couldn't either. I don't want anything that is going to make people stare at my chest!!! I already figure they'll be doing just what I used to do..."Oh, she had a mastectomy. Which side was it on?" (Because you will have forgotten that I had a bilateral.)

We decided on a size 5 (why prostheses can't come in A-B-C-D like the bras, I don't know.) She pulled out two different brands. The first one was good, looked about right, and she said when people hugged me it would feel real. The second one...well, it was lighter but it looked kind of like the size of a coconut!!! I held it up and it covered about half my chest!! I said, "No way! This one will not do!" She took it away and started putting it in the box. Then she said, "Oh, that's not a size 5, it was a size 8!" We went with the first one...

So, I am all set. Just waiting to feel healed up. Which everyone tells me is coming along wonderfully, but I feel like it's taking forever!! It's only been 3-1/2 weeks, so I guess that's not long. But I want to get back to my regular life...whatever that is.

My surgical drains were removed about 10 days post surgery. I want to emphasize that I followed the doctors orders on when they were ready to be removed. I did NOT cheat!! But now I am having problems with fluid accumulating near the surgical sites. So I have been in four different times to have them drained. This involves a needle and syringe. It sounds terrible, but luckily I am still numb, so I don't feel a thing. But it does become a nuisance, messing up my schedule. If you think of me, please pray that this fluid would stop. Especially because Loy and I are planning a weeklong vacation right after the new year.

Off topic...my little sweet Paytootie sort of likes the attention she gets when she is sick. The sickbed on the couch, the cartoons, the snacks being delivered right to you. So, last week when her brother was sick she was pretty sure she was sick too. Angela said, "Where are you sick?" Her brilliant answer? "My lips." I hate it when I get those sick lips!!! :)

No Christmas cards this year from me. Sorry, I just don't have it in me right now. I hope you all have a very Merry Christmas and that you get to hug your family and friends!

Love,

Kitt.


Monday, December 8, 2014

12-8-14 My Eyes are Up Here--The Post-Op CANCELLED


Hi Friends,

This post is the one that I had thought would be the most helpful...the one that I had searched the internet for when I was trying to prepare for surgery...the one explaining everything about the recovery.

I had plans to say something about how it wasn't that the BIG REVEAL was not that bad...that it was reminiscent of girlhood (at about age 10). It's not. I am thankful for the nurse who told us that the first time you see "It" is the worst it will ever look. But I really don't feel like going into details about what things do look like.

I had plans to tell you how I had 1/4 inch of hair and it was beautiful and curly...I do not have any hair yet. Well, maybe nubs. And, from what I can see of the nubs, it looks...white!!!

I had plans to tell you how I had bounced right back and was back to my normal life within a week...I'm not.

And I had plans to leave you thinking I was Superwoman...I am definitely not. One day I am filled with gratefulness to God that it is all behind me and that, we believe, all cancer is gone. The very next day I am crying because I am tired...tired of feeling tired...tired of not being 100%...tired of not being able to do what I want...tired of feeling sequestered and alone. Reminiscent of the Israelites in the desert, isn't it??

But, I will tell you these things...

1. Pain has continued to be a non-issue. I am numb pretty much from armpit to bottom of ribs. When the drains were pulled I had no idea it was going on. The numbness is from them messing around with nerves, I guess, and should either lessen or disappear completely, but it could take a year.

2. As with any major surgery, I am still tired. I will have an energetic day (well, relatively speaking) and then, the next day, I am exhausted. I still sleep...a lot. I've heard it takes quite awhile to get all the anesthesia out of your system.

3. I have lost some weight--which would be good because chemotherapy added 10 pounds (crazy, huh?)--oh, wait, I just had a bilateral mastectomy...let's think about why I've lost weight...

4. My magnesium was normal last week...the first time in about two months with no IV!!

5. There was (before surgery) a minuscule portion of the tumor remaining, so it was a good thing that surgery was done and they removed everything remaining. Nothing in any lymph nodes.

6. Dear friends came over Saturday and wrapped all my presents. Kids, your presents never looked so good!!!

7. BBC Period dramas are very good time fillers.

8. My taste buds are back!!! I am very thankful for this. The remaining side effects from chemo that I look forward to lessening are tingling in my hands and feet and low energy level.

9. Go get your mammogram and do your self-exams. NOW!!!

10. God has been with me, carrying me, whether I knew it at the time or not. I cannot see how this whole experience...twice...can be what is best for me. But I have to trust that God Knows.

I don't know if I'll get a Christmas card out this year or not. This may be it. If it is, I hope you have a wonderful Christmas. I hope you get to see special family and friends. I hope you get the present of your dreams. I hope you feel loved this Christmas. I hope you remember that we are celebrating the birth of God's Son.

Love,

Kitt.